Going For A Ride ...

Tuesday, July 26, 2005

Angela got to ride in a wheel chair yesterday! Mom says she was really excited about it! I should think so, she hasn't gotten to be 'up' for over a month!

Sitting up is extremely painful for her (as is anyone touching her legs...which makes re-arranging her very interesting) so the ride was pretty short...but still, she was happy to get out of bed.

Her trach is OUT. Gone, bye-bye! The doctors came in and just took it out, put some gauze over the hole and said it should heal all by itself in a few days. We haven't seen her since Sunday but we'll be checking the next time we see her!

Sorry for the break in posting...

Friday, July 15, 2005

We're so sorry for the break in posting. This last week has been hectic with plans for Robby's big #7 (yesterday) and just life in general.

We had a great time at Boomers --- thanks to everyone who showed! Didn't get a chance to see Angela (weather, traffic, and a bath all conspired against us!) but Nana and Papa got in a nice couple hours.

Angela's feeling pretty icky, in constant pain and usually nauseous. Which is probably because she is eating and drinking now. No more feeding tube! Yay! We'll be kind and call her food...interesting.

Since we have no more birthdays comin' up, we should be getting back to our normal visiting schedule!

Jul. 8th

Friday, July 08, 2005

Today was interesting.

When we first got there, Angela was asleep. About 10 minutes later, she woke up and immediately asked for her cellphone. Jessica had the job of telling her that we hadn't.

Angela threw. a. fit! She was so mad she started yelling.

It wasn't that she was mad that was the stunner...

It was that we could HEAR HER!

Yup. Our little girl has found her voice.

And its her regular every day voice. She sounds exactly the same. But talking seemed to wear her out so after about 5 minutes of very vocal disappointment, she went back to sleep. Then again, she could have just been ignoring us due to the whole cell phone thing.

By the time we left, 3 hrs later, Angela was talking to us again and in a slightly better mood, probably because I promised we'd bring the phone on Sunday.

Her new trach still bothers her a little but I think being able to talk makes it worth it for her.

She still refuses to eat (and if you saw the stuff on those trays, you'd know why) but she can't get enough water. Her coloring looks almost perfect but she still can't move anything but her arms.

For now. She'll get better tho. It's only a matter of time.

07/03/2005

Sunday, July 03, 2005

Poor Angela. She's feeling really sick and her nurse is (in one word) AWFUL. She acts like helping Angela is the most aggrivating / worst thing in the world. At one point, another nurse came in because a machine had been beeping for 10 minutes (10 MINUTES!!!) and Angela mouthed: MY NURSE HATES ME.

I could go on about this AWFUL nurse, but we'll stick to Angela.

The trach completely frees up her mouth, so she's mouthing very well. We haven't played the alphabet game since she got it. She loves getting her exercise, even though it hurts sometimes (she's afraid of blood clots and letting her muscles atrophy). She has also lost almost 25 lbs! Not the best way to lose weight but...that's what happens when you're on a feeding tube I guess.

Angela still sleeps 90% of the time. She's pretty nauseous, still has pneumonia, and has bruises all over her wrists from getting her arteries poked. For all she's been through, Angela is holding up so well!

We're letting Mom have a break until 5:30 tonight. Michele stayed the night last night (poor thing. It turned out to be Angela's worst night in awhile) and Mom got to catch up on sleep in a real bed!